Being a carer to someone with mesothelioma can be a very challenging journey. It may mean you are on call 24/7 for months or years on end. It is exhausting and can take a toll on your physical and mental health. It is vital you get the support you need, and access respite care regularly.
We are here to help. We can assist with organising respite care and link you with other available services, ensuring you have the support you need. You do not have to walk this journey alone.
Our team of dedicated support staff is led by Lizz Clarke, our Support Nurse Coordinator, who brings over 20 years of nursing experience. Lizz and several members of our team have also been primary carers themselves, giving them a valuable personal understanding of the challenges of being a caregiver.
We provide a range of support options for both carers and patients including:
We’re here to help you feel informed, supported and connected throughout your journey.
Caring for someone with a condition that affects quality of life or is life-limiting can be both physically and emotionally demanding.
The MADDA team can help you explore respite care options so there is time to rest and recharge. Whether the need is for short-term relief or longer planned breaks, our team can connect you with appropriate respite services and guide you through the process.
People often want to help, but are unsure how to, and not all people are suited to all tasks. It might be helpful to think about who would be best suited to help out with specific tasks, such as driving to routine appointments, making a meal, tidying the house or garden, or acting as a communication hub. For further guidance and information on how friends and family can be helpful see our Caregiver's E-Book
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