Mesothelioma

Caring For Someone With Mesothelioma

What it means to be a mesothelioma caregiver

Being a carer is hard. The focus is often on the needs of the person receiving the care, not the caregiver. Being a carer may mean you are on call 24/7 for months or years on end.

It is exhausting and often can take a toll on your mental and physical health. As a caregiver, it is important to consider your own needs and health, and to access support and respite care regularly. Remember you need to look after yourself first so that you may be of service to others. 

‘Be there for others, but never leave yourself behind’ – Dodinsky.

Respite care

It is important to access respite care as an early intervention. This may be informal arrangements provided by family or friends, or formal services provided by external agencies such as Carers WA, Silver Chain, Cancer Council or the Commonwealth home support program.

Arranging respite care early is important as it may take a while to put things in place, and it also allows an opportunity for everyone involved to become familiar and comfortable with the process before the carer is feeling overwhelmed.

Arranging respite 

Respite care can be provided in many ways by several services. Respite may include a few hours a week, a few days a month, or a few weeks to allow the carer to have a proper break. 

Respite service can be provided in-home, at day centres, overnight or at hospice care according to your needs. You can start the conversation with your GP or Oncology team, social worker or carers gateway. Remember that there may be a time lag between asking for help and having something in place.   

If you are having difficulty raising the issue, our MADDA Support Network Coordinator may be able to help guide you through the process. Don’t wait until you are on your knees before asking for help.

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Founded in 2015, Mesothelioma and Dust Diseases Australia Ltd (MADDA) raises awareness of the risks of asbestos and supports people with mesothelioma.
Reducing the impact of asbestos
Mesothelioma and Dust Diseases Australia Ltd (MADDA) is a registered charity with the Australian Charities and Not-for-profits Commission
(ACNC) ABN 57 605 192 710
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