Mesothelioma / Living With Mesothelioma

Specialist Mesothelioma Support

Personalised support for patients and families

Navigating a diagnosis such as mesothelioma can be a complex mix of juggling appointments, symptom control, side effects, supporting mental health and wellness strategies, legal issues and end of life planning.

Doing all of this whilst trying to adjust to an ever changing new normal is rather like learning to swim in a washing machine.
No one has to face this alone. Our nurse-led team is here to walk alongside individuals and families as they come to terms with the diagnosis. We offer a specialist mesothelioma support service led by those who have lived experience of the disease.

Specialist support team

Our specialist mesothelioma support team can provide the patient and caregiver personalised support to help navigate the physical, mental and emotional aspects of this journey. We can also help with understanding the services available, decoding the medical jargon, and advocating for the patient.

We can act as a central point of contact bridging the gap between acute and community services. If we don't know the answer, we will help find it.

We offer a range of services, including one-to-one support, in-person peer group sessions, phone assistance, connection to other services, and more.

He was a Doctor, me a nurse, yet we still fell through the gaps. If we struggled, what about the people without our advantage?

  • – Lizz (on why a specialist nurse is needed)

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Founded in 2015, Mesothelioma and Dust Diseases Australia Ltd (MADDA) raises awareness of the risks of asbestos and supports people with mesothelioma.
Reducing the impact of asbestos
Mesothelioma and Dust Diseases Australia Ltd (MADDA) is a registered charity with the Australian Charities and Not-for-profits Commission
(ACNC) ABN 57 605 192 710
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