MADDA's support model is nurse-led, statewide and free, and it doesn't ask anything of the person receiving it. There's no claim to sign and no compensation process to navigate first. Every mesothelioma patient in WA can access a MADDA nurse, regardless of their circumstances.
Support starts at diagnosis and continues through treatment, palliative care, and after death for the family left behind. Our specialist nursing service includes home visits, where we take the time to understand the home situation, and the specific needs of the patient and carer, allowing us to provide more helpful support.
We help patients come to terms with their diagnosis, understand what to expect, manage symptoms, and plan for end of life decisions such as advanced care planning and voluntary assisted dying.
Families who've lost someone stay connected to MADDA afterwards, through ongoing bereavement support and a peer group of others who have the same lived experience.
We've also published The Hope Companion, a disease-specific resource written with people who've lived through a mesothelioma diagnosis themselves. It's free for every patient and carer in WA, and it matters most for families in regional areas who often don't have a specialist near them.
A mesothelioma diagnosis places significant demands on the individual and the health system responsible for their care, and MADDA's model is designed to ease both.